Skip to content

Genetic Privacy

Definition
AI-generated

Genetic privacy is the protection of an individual’s genomic and inferred genetic information from unauthorized access, misuse, or re-identification—spanning laboratory systems, research repositories, biobanks, consumer testing, and family disclosure.

Topics
Ethics, law & society
Related
Biobank Genome-Wide Association Study (GWAS) Informed Consent

Why it matters in GWAS

Summary statistics, allele frequencies, and pedigree-structured cohorts can enable linkage attacks or relative inference; cross-cohort sharing and cloud pipelines must align with consent, law (e.g. sector-specific rules), and community expectations, especially for marginalized groups.

Example usage

"The DUA required safeguards for genetic privacy and prohibited re-identification attempts from aggregate GWAS releases."

Biobank Genome-Wide Association Study (GWAS) Informed Consent Population Descriptors in Genomics Research Relatedness
Related-term network

Click any node to open that term page.

Node order. The current term is first. Next come every page linked from Related terms, in the same top-to-bottom order as that list. Then new terms appear in two-hop layers: for each of those direct neighbors (in that same order), their related terms are appended if not already listed. A third pass does the same for two-hop nodes. The walk stops when a fixed maximum number of nodes is reached.

References

  • Clayton EW. (2003). Ethical, legal, and social implications of genomic medicine. N Engl J Med.
← Genetic hitchhiking Genetic relatedness →

Last updated (UTC · Git history)